(edited) Five years ago at Jackson Memorial Hospital
in Miami, Trish and Tom Williams gave birth to a 9-pound, 6-ounce
daughter named Barbara-Louise. At first the infant seemed perfectly
healthy, but the following day she began having seizures and was
rushed to the neonatal intensive care unit of the hospital. While
the anxiety-ridden parents waited, physicians conducted tests to
determine what was causing the seizures.
“There doesn't seem to be a thing wrong
with her,” one physician explained. “She's definitely
having seizures, lots of them, but we don't know why. We'll
have to conduct more tests.”
That's when Tom Williams, then associate
director of the University of Miami School of Medicine
library, remembered a conversation among family members
that he had overheard years before. Other relatives
had suffered seizures in their infancy.
Immediately he went to the library, sat
down at one of the many computers and typed three words
in the national MEDLINE search database: “Seizure,” “Family” and “Neonatal.” (The
word “Baby” also would have worked.)
Almost immediately a number of citations
appeared on the screen, all about Benign Neonatal Seizure
Disorder, or BNSD, a rare but documented genetic syndrome
that runs in families. Williams printed out several
articles which explained the condition, its history and
treatment. Typically, it's harmless and disappears
within the first year or two in most cases.
Williams hurried back to the physicians
and presented his findings, but they weren't convinced. Williams
was. He withdrew consent for another attempt at
a spinal tap. (Two previous attempts had failed,
and the procedure was not risk-free.)
A few days later, the baby's maternal grandfather
confirmed that he had traced the disorder in his family
as far back as the 17th century. Little Barbara-Louise's
seizures disappeared without treatment after the ninth
month.
Today, Williams is director of the University
of South Alabama's Biomedical Library. And the
resources that helped his family in Miami are available
to the public here, thanks to the combination of Internet
technology and the library's growth.
When the USA Biomedical Library was first
established in a corner of the already cramped University
Library in 1972, it's primary purpose was to help doctors
to diagnose and treat patients. Today, that remains
a major need.
“These days, with the everchanging landscape
of medical knowledge, it's impossible for most physicians
to keep up with it all,” says Dr. William Gardner, Locke
Professor and chair of the Department of Pathology at
USA's College of Medicine. “We may scan dozens
of medical journals each month, and retain a general
awareness, but not the details.
“Then we have a patient with a particular
ailment we think, ‘Yes, I read about this in The New
England Journal of Medicine a few months back. There's
a new, more successful approach to this.' I can go to
the Biomedical Library, and in minutes the staff will
track down the article and have a copy in my hands.”
In 1992, the Biomedical Library moved to
a newer facility, Alpha North, a former dormitory on
the university campus in west Mobile. The new facility
has three times the previous space, and there's a satellite
library at University Hospital on Fillingim Street.
The USA Biomedical Library can now provide
services for the entire local community. Through
its outreach program, called SouthMed, it serves, for
a fee, research needs of non-USA area hospitals, corporations,
law firms and medical personnel.
Like many medical school libraries, especially
those affiliated with state universities, the USA facility
is also open to the public. And some Mobilians
are taking advantage of the opportunity to check out
their own ailments and those of friends and relatives.
According to USA Today, during the last
two years, The National Library of Medicine's MEDLINE,
a database of abstracts from medical journals, has increased
from seven million searches annually to more than 180
million a year–and one third of them are done by the
public.
Of course, to the uninitiated, setting
foot inside a state-of-the-art biomedical library can
be intimidating. The first floor of the USA facility
seems relatively familiar–a circulation desk, rows of
shelving full of medical texts and bound volumes of medical,
psychiatric and related journals. Computers appear
everywhere–many more than in a typical library.
And there are still more on the second
floor. In fact, there's a microcomputer laboratory,
a multimedia lab, an instructional lab–and dozens of
computers for patrons to use. What's more, there's
a Computer Room, with scores of blinking lights, wires,
electronic devices. The constant hum of the machinery
is to a biomedical library what Muzak is to elevators. This
computer room is the brains of the library. Physicians
and other researchers anywhere in the world can use their
computers to gain access to the library's research material
through the networked computers in this room.
According to library director Williams,
whose newborn had the seizures, some of the library's
heaviest users rarely come to the facility.
“For many of our patrons, we have become
very much a library without walls,” he says. “In
the past, most users went to the reference desk for information. These
days, more often than not, the College of Medicine and
Biomedical Library's Homepage on the World Wide Web (http://southmed.usouthal.edu)
is the first point of contact.”
The same is true of the university's medical
students, local physicians, nurses and physical therapists. Ordinary
citizens may come to the library and sit down at any
computer, initiate a search on any of more than 100,000
headings in the database and received an extensive bibliography
of professional articles on the subject. It's even
possible, for a fee, to get a printout of an entire article. Right
now, the library has access to the full texts of several
hundred medical and related journals, and that number
will grow exponentially over the next few years.
To help newcomers–both medical personnel
and ordinary citizens–learn how to tap into the overwhelming
wealth of information available, librarians at USA Biomedical
Library regularly hold classes to teach the use of both
traditional library tools and indexes and the more sophisticated
electronic equipment.
Despite his own success story, Williams
encourages potential users to take advantage of these
classes, and to exercise caution.
“We always tell everybody to always check
with their physicians,” he said. “There's so much
bogus information on the Web that you can never tell” if
a recommended remedy is good medicine or not. Even
the respected medical journals require experience to
interpret and use correctly.
“People certainly should never self-diagnose
or self-treat,” he said. “In my case, I went to
the doctors and said, ‘This is what I found, what do
you think?' It ‘s important that people know it's
always the doctor who makes the final decision.”
The library helps the public in other ways
as well. As Gardner explains, “TV, magazines and
newspapers frequently announce medical developments and
breakthroughs, and patients are always coming to their
doctors with treatments and drugs they want to try. Usually
the information is incomplete, and sometimes dead wrong. The
doctor needs the original research on which the report
was based. That's when he needs the Biomedical
Library and its staff.”
But the most important function of the
library will always be in helping physicians to make
accurate diagnoses and form effective treatment protocols. “The
heart of a medical school is its library,” Gardner says.
Famed cardiologist Dr. Michael E. Debakey
puts it this way: “Good information is the best medicine. Immediate
access to current medical research information is as
critical as the biopsy and the X-ray have been in the
diagnosis and treatment of disease.”
Physically, USA's biomedical library is
not as large as most academic libraries–because it doesn't
need to be. Today, thousands of books and journals
can be stored not on literally miles of shelves but on
Internet sites. In that respect, Williams says, “We
are state of the art in terms of technology, professional
expertise and information resources–we need not take
a back seat to any of the major academic medical library
centers.”
In fact, the new technology now saves not only in the expense of building construction,
but also in the cost of having to store and bind many journals.
For more information, call the USA Biomedical
Library at 460-7043.InfoFair
The USA Biomedical Library and College of Medicine will hold a technology InfoFair
April 12-13, 2000, from 10 a.m. until 6 p.m. The latest in information
technology, medical education, medical technology, telemedicine, distance education,
media production services as well as traditional library services will be showcased.