2008 MASA Annual Session - Personal Health Records

2008 MASA Annual Session

Personal Health Records - A Selected Bibliography

[last updated 1/16/07]

----------. “Recordkeeping systems: personal health records.” Journal (American Medical Record Association) 55, no. 12 (December 1984): 42.
----------. “Report on attitudes about personal health records.” Internet Healthc Strateg 6, no. 9 (September 2004): 10-1. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=15526437.
AHIMA. “myPHR [web site].” http://www.myphr.com/.
AHIMA Personal Health Record Practice Council. “Helping Consumers Select PHRs: Questions and Considerations for Navigating an Emerging Market.” Journal of AHIMA 77, no. 10 (December 2006): 50-56. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_032260.hcsp.
AHIMA e-HIM Personal Health Record Work Group. “Defining the personal health record. AHIMA releases definition, attributes of consumer health record.” J AHIMA 76, no. 6 (June 2005): 24-5. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_027351.hcsp.
AHIMA e-HIM Personal Health Record Work Group. “Practice brief. The role of the personal health record in the EHR.” J AHIMA 76, no. 7 (August 2005): 64A-64D. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_027539.hcsp.
AHIMA, and AMIA. “The value of personal health records. A joint position statement for consumers of healthcare.” J AHIMA 77, no. 9 (October 2006): 24. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_031992.hcsp.
Abidi, S. S., and A. Goh. “A personalised Healthcare Information Delivery System: pushing customised healthcare information over the WWW.” Stud Health Technol Inform 77 (2000): 663-7. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11187636.
Angst, Corey M., Agarwal, Ritu, and Janelle Downing. “An Empirical Examination of the Importance of Defining the PHR for Research and for Practice.” http://papers.ssrn.com/sol3/papers.cfm?abstract_id=904611.
Ayana, M., P. Pound, F. Lampe, and S. Ebrahim. “Improving stroke patients' care: a patient held record is not enough.” BMC Health Serv Res 1, no. 1 (2001): 1. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=11257719.
---. “The views of therapists on the use of a patient-held record in the care of stroke patients.” Clin Rehabil 12, no. 4 (August 1998): 328-37. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=9744668.
Baker, D. B., and D. R. Masys. “PCASSO: a design for secure communication of personal health information via the internet.” Int J Med Inform 54, no. 2 (May 1999): 97-104. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=10219949.
Ball, M. J., and J. Gold. “Banking on health: Personal records and information exchange.” J Healthc Inf Manag 20, no. 2 (Spring 2006): 71-83. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16669591.
Baum, Brian. “Patients Will Drive Technology Adoption.” Health IT World, September 30, 2004. http://www.health-itworld.com/enews/09-30-2004_424.html?action=print.
Benton Foundation. “Networking for Better Care: Health Care in the Information Age.” (1999). http://www.benton.org/publibrary/health/home.html.
Bhuyan, K. K. “Health promotion through self-care and community participation: elements of a proposed programme in the developing countries.” BMC Public Health 4, no. 1 (April 16, 2004): 11. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15086956.
Blobel, B., and P. Pharow. “Patient data to go. Germany's national smart card project.” J AHIMA 76, no. 2 (February 2005): 48-51. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_025744.hcsp.
Brennan, Patricia Flatley. “Personal Health Records: an Overview.” http://healthsystems.engr.wisc.edu/papers_presentations/PHRs_An_Overview.ppt.
Burrington-Brown, J. “The PHR effect.” J AHIMA 76, no. 2 (February 2005): 58-9. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_025748.hcsp.
---. “Consumer empowerment.” J AHIMA 77, no. 3 (March 2006): 54. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_030861.hcsp.
---. “The power of patient access.” J AHIMA 76, no. 5 (May 2005): 58-9. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_026999.hcsp.
---. “Educating the public about personal health records.” J AHIMA 76, no. 9 (October 2005): 94-5. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_028152.hcsp.
Burton, Lynda C., GERARD F. ANDERSON, and IRVIN W. KUES. “Using Electronic Health Records to Help Coordinate Care.” Milbank Quarterly 82, no. 3 (2004): 457-481. http://www.blackwell-synergy.com/links/doi/10.1111/j.0887-378X.2004.00318.x/abs.
Campbell, R. J. “Getting to the good information. PHRs and consumer health informatics.” J AHIMA 76, no. 10 (December 2005): 46-9; quiz 51-2. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_028384.hcsp.
Cimino, J J, J Li, E A Mendonça, S Sengupta, V L Patel, A W Kushniruk, et al. “An evaluation of patient access to their electronic medical records via the World Wide Web.” Proceedings / AMIA ... Annual Symposium. AMIA Symposium (2000): 151-5. http://www.amia.org/pubs/proceedings/symposia/2000/D200410.pdf.
---. “The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records.” International journal of medical informatics 68, no. 1-3 (December 18, 2002): 113-27.
Clarke, J. L., D. C. Meiris, and D. B. Nash. “Electronic personal health records come of age.” Am J Med Qual 21, no. 3 Suppl (June 2006): 5S-15S. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16621927.
Conn, J. “Personal and (maybe) confidential. Questions over privacy, formats and definitions remain, but personal health records are on the way.” Mod Healthc 36, no. 27 (July 3, 2006): 28-31. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16898550.
Connecting for Health. Connecting Americans to Their Health: a Common Framework for Networked Personal Health Information monograph on the Internet. New York: Markle Foundation, 2006. http://www.connectingforhealth.org/commonframework/docs/P9_NetworkedPHRs.pdf.
---. “Americans Want Benefits of Personal Health Records.” June 5, 2003. http://www.connectingforhealth.org/resources/phwg_survey_6.5.03.pdf.
Connecting for Health. Working Group on Policies for Electronic Information Sharing Between Doctors and Patients. Connecting Americans to Their Healthcare: Final Report monograph on the Internet. New York: Markle Foundation, 2004. http://www.connectingforhealth.org/resources/wg_eis_final_report_0704.pdf.
Cornbleet, M. A., P. Campbell, S. Murray, M. Stevenson, and S. Bond. “Patient-held records in cancer and palliative care: a randomized, prospective trialt.” Palliat Med 16, no. 3 (May 2002): 205-12. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=12046996.
Cronin, Carol. Personal Health Records: an Overview of What is Available to the Public. Washington, D.C.: AARP Public Policy Institute, 2006. http://assets.aarp.org/rgcenter/health/2006_11_phr.pdf.
D'Alessandro, D M, and N P Dosa. “Empowering children and families with information technology.” Archives of pediatrics & adolescent medicine 155, no. 10 (October 2001): 1131-6.
de Clercq, P A, A Hasman, and B H Wolffenbuttel. “Design of a consumer health record for supporting the patient-centered management of chronic diseases.” Medinfo. MEDINFO 10, no. Pt 2 (2001): 1445-9.
Denton, I. C. “Will patients use electronic personal health records? Responses from a real-life experience.” J Healthc Inf Manag 15, no. 3 (Fall 2001): 251-9. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11642143.
Detmer, Don. “Building the national health information infrastructure for personal health, health care services, public health, and research.” BMC Medical Informatics and Decision Making 3, no. 1 (2003): 1. http://www.biomedcentral.com/1472-6947/3/1.
---. Learning from Abroad: Lessons and Questions on Personal Health Records for National Policy. Washington, D.C.: AARP Public Policy Institute, 2006. http://www.aarp.org/research/health/healthliteracy/2006_10_phr_abroad.html.
Dorr, David A, Belle Rowan, Matt Weed, Brent James, and Paul Clayton. “Physicians' attitudes regarding patient access to electronic medical records.” AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium (2003): 832.
---. “Informatics systems to promote improved care for chronic illness: A literature review.” J Am Med Inform Assoc (January 9, 2007).
“EFMI Web Portal - International Symposium on Electronic Personal Health Records.” http://mirc.gsf.de/index.php?option=com_content&task=view&id=594&Itemid=125January 11, 2007).
Earnest, Mark A, Stephen E Ross, Loretta Wittevrongel, Laurie A Moore, and Chen-Tan Lin. “Use of a patient-accessible electronic medical record in a practice for congestive heart failure: patient and physician experiences.” Journal of the American Medical Informatics Association : JAMIA 11, no. 5:410-7.
Edlin, Mari. “Implementing personal health records.” AHIP Coverage 47, no. 2:14-6, 19.
Endsley, S., D. C. Kibbe, A. Linares, and K. Colorafi. “An introduction to personal health records.” Fam Pract Manag 13, no. 5 (May 2006): 57-62. http://www.aafp.org/fpm/20060500/57anin.html.
Fox, Leslie Ann. Health Record Paradigm Shift: Consumer Health Informatics Status in the United States. Washington, D.C.: AHIMA, 2004. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok3_005546.hcsp.
Friedman, B. “Health records get personal: a technology outlook for consumer access to personal health information.” J AHIMA 76, no. 1 (January 2005): 42-5; quiz 47-8. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_025421.hcsp.
Galloway, G. “Getting personal. The personal health record is a key element in attaining the complete patient medical record.” Healthc Inform 23, no. 11 (November 2006): 45-6. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=17144335.
Ghez, M., A. Venot, J. Bouaud, J. Charlet, B. Seroussi, P. Zweigenbaum, et al. “Design of a Knowledge-structured Personal Health Record for Application in Preventive Care for the Elderly.” Medinfo 2004, no. CD (2004): 1613. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15360442.
Greenes, R. A., and N. M. Lorenzi. “Audacious goals for health and biomedical informatics in the new millennium.” J Am Med Inform Assoc 5, no. 5 (October 1998): 395-400. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9760385.
Gunter, T. D., and N. P. Terry. “The emergence of national electronic health record architectures in the United States and Australia: models, costs, and questions.” J Med Internet Res 7, no. 1 (2005): e3. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=15829475.
Hagland, M. “Patient to partner. Will PHRs change the physician-patient relationship?” J AHIMA 76, no. 10 (December 2005): 38-40. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_028584.hcsp.
---. “Getting more personal.” J AHIMA 72, no. 8 (September 2001): 32-6. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok2_001241.hcsp.
---. “Online Consumer Health Records: Revolution or Confusion?” Journal of AHIMA 71, no. 3 (March 2000): 28-32. http://library.ahima.org/xpedio/groups/secure/documents/ahima/pub_bok2_000471.html.
Hampshire, A. J., M. E. Blair, N. S. Crown, A. J. Avery, and E. I. Williams. “Variation in how mothers, health visitors and general practitioners use the personal child health record.” Child Care Health Dev 30, no. 4 (July 2004): 307-16. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15191420.
Harman, L. B. “HIPAA: a few years later.” Online J Issues Nurs 10, no. 2 (May 31, 2005): 3. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=15977976.
Harrison, J., and N. Booth. “Applying new thinking from the linked and emerging fields of digital identity and privacy to information governance in health informatics.” Inform Prim Care 11, no. 4 (2003): 223-8. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=14980062.
Hassol, Andrea, James M. Walker, David Kidder, Kim Rokita, David Young, Steven Pierdon, et al. “Patient Experiences and Attitudes about Access to a Patient Electronic Health Care Record and Linked Web Messaging.” J Am Med Inform Assoc 11, no. 6 (2004): 505-513. http://www.jamia.org/cgi/content/abstract/11/6/505.
Hermansen-Kobulnicky, C. J., J. B. Wiederholt, and B. Chewning. “Adverse effect monitoring: opportunity for patient care and pharmacy practice.” J Am Pharm Assoc (Wash DC) 44, no. 1 (February 2004): 75-86; quiz 87-8. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=14965157.
Hicks, J. “Advocating for the PHR: educator's work sets stage for the future.” J AHIMA 76, no. 10 (December 2005): 88. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_028592.hcsp.
Honeyman, Alasdair, Benita Cox, and Brian Fisher. “Potential impacts of patient access to their electronic care records.” Informatics in primary care 13, no. 1 (2005): 55-60.
Iakovidis, I. “Towards personal health record: current situation, obstacles and trends in implementation of electronic healthcare record in Europe.” Int J Med Inform 52, no. 1-3 (December 1998): 105-15. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9848407.
---. “From electronic medical record to personal health record.” Stud Health Technol Inform 43 Pt B (1997): 915-22. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10179802.
---. “From electronic medical record to personal health records: present situation and trends in European Union in the area of electronic healthcare records.” Medinfo 9 Pt 1 (1998): suppl 18-22. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10384547.
Jacobs, Ellen B. “Practice Toolkit: Occupational Health.” Journal of AHIMA 76, no. 8 (September 2005): 63,65. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_027964.hcsp.
Jeffs, D., V. Nossar, F. Bailey, W. Smith, and T. Chey. “Retention and use of personal health records: a population-based study.” J Paediatr Child Health 30, no. 3 (June 1994): 248-52. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8074911.
---. “The personal health record. Making it work better for general practitioners.” Aust Fam Physician 22, no. 8 (August 1993): 1417-9, 1421, 1424-7. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8379881.
Johnson, S., and P. Mayor. “A patient-held record for cancer patients from diagnosis onwards.” Int J Palliat Nurs 8, no. 4 (April 2002): 182, 184-9. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=12048447.
Jones, R., J. McConville, D. Mason, L. Macpherson, L. Naven, J. McEwen, et al. “Attitudes towards, and utility of, an integrated medical-dental patient-held record in primary care.” Br J Gen Pract 49, no. 442 (May 1999): 368-73. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=10736887.
---. “Patient participation in EHR benefits.” Health Manag Technol 24, no. 10 (October 2003): 64, 63. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=14535127.
Joshi, P., K. V. Jones, R. M. Hanson, G. Alperstein, and B. Fasher. “Personal health records.” J Paediatr Child Health 29, no. 5 (October 1993): 400-1. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=8240876.
Jossi, F. “Personal health records.” Healthc Inform 23, no. 2 (February 2006): 52, 54. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16597007.
Joustra-Enquist, I., and B. Eklund. “SUSTAINS - Direct Access for the Patient to the Medical Record Over the Internet.” Medinfo 2004, no. CD (2004): 1673. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=15360502.
Kardas, Geylani, and E Turhan Tunali. “Design and implementation of a smart card based healthcare information system.” Computer methods and programs in biomedicine 81, no. 1 (January 2006): 66-78.
Kim, M. I., and K. B. Johnson. “Patient entry of information: evaluation of user interfaces.” J Med Internet Res 6, no. 2 (May 14, 2004): e13. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=15249262.
---. “Personal Health Records: Evaluation of Functionality and Utility.” J Am Med Inform Assoc 9, no. 2 (2002): 171-180. http://www.jamia.org/cgi/content/abstract/9/2/171.
Kimmel, Z., R. A. Greenes, and E. Liederman. “Personal health records.” J Med Pract Manage 21, no. 3 (December 2005): 147-52. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16471387.
---. “Personal health records.” J Med Pract Manage 21, no. 3 (December 2005): 147-52. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=16471387.
Klein-Fedyshin, M. S. “Consumer Health Informatics--integrating patients, providers, and professionals online.” Med Ref Serv Q 21, no. 3 (Fall 2002): 35-50. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=12238015.
Kloss, Linda. “Greater Urgency, Sharper Focus for PHRs.” Journal of AHIMA 76, no. 10 (December 2005): 27. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_028583.
Knowles, R., M. Blackburn, M. Zahir, M. Russell, A. Carrier, E. Nevrkla, et al. “The implementation of a new parallel child health record.” Child Care Health Dev 25, no. 4 (July 1999): 253-66. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10399031.
Kuhnel, E., G. Klepser, and R. Engelbrecht. “Smart cards and their opportunities for controlling health information systems.” Int J Biomed Comput 35 Suppl (February 1994): 153-7. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8188409.
Lafky DB. “A User-driven approach to personal health records.”
Lecker, Robert, and et al. “Review of the Personal Health Record (PHR) Service Provider Market: Privacy and Security.” January 5, 2007. http://www.hhs.gov/healthit/ahic/materials/01_07/ce/PrivacyReview.pdf.
Lee, M., C. Delaney, and S. Moorhead. “Building a personal health record from nursing perspective.” Stud Health Technol Inform 122 (2006): 25-9. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=17102211.
Liaw, S. T. “Patient and general practitioner perceptions of patient-held health records.” Fam Pract 10, no. 4 (December 1993): 406-15. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8168677.
---. “The impact of a computer generated patient held health record.” Aust Fam Physician 27 Suppl 1 (January 1998): S39-43. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=9503735.
---. “The effect of a computer-generated patient-held medical record summary and/or a written personal health record on patients' attitudes, knowledge and behaviour concerning health promotion.” Fam Pract 13, no. 3 (June 1996): 289-93. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=8671137.
Lin, Chen-Tan, Loretta Wittevrongel, Laurie Moore, Brenda L Beaty, and Stephen E Ross. “An Internet-based patient-provider communication system: randomized controlled trial.” Journal of medical Internet research 7, no. 4 (2005): e47.
Lipman, Marvin M. “Office Visit: Take Control of Your Medical Records.” Consumer Reports on Health 17, no. 2 (2005): 11. http://www.consumerreports.org/oh/resources/freepdfs/sample.pdf.
Lowes, R. “Personal health records: What's the status now?” Med Econ 83, no. 4 (February 17, 2006): TCP13-4, TCP16. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16573223.
Markle Foundation. “Attitudes of Americans Regarding Personal Health Records and Nationwide Electronic Health Information Exchange.” October 2005. http://www.phrconference.org/assets/research_release_101105.pdf.
---. “Connecting Americans to Their Health Care: Empowered Consumers, Personal Health Records and Emerging Technologies.” December 7, 2006. http://www.phrconference.org/agenda.php.
Masys, Daniel, Dixie Baker, Amy Butros, and Kevin E Cowles. “Giving patients access to their medical records via the internet: the PCASSO experience.” Journal of the American Medical Informatics Association : JAMIA 9, no. 2:181-91.
Moen, A., and P. F. Brennan. “Health@Home: the work of health information management in the household (HIMH): implications for consumer health informatics (CHI) innovations.” J Am Med Inform Assoc 12, no. 6 (December 2005): 648-56. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16049230.
Mon, D. T. “PHR and EHR: what's the difference? Records differ in span and legality.” J AHIMA 76, no. 10 (December 2005): 60-1. http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_028589.hcsp.
Morrissey, J. “But what does the public think? For consumers to adopt PHRs, they need reasons that hit home.” J AHIMA 76, no. 10 (December 2005): 42-4. http://library.ahima.org/xpedio/groups/public/documents/ahima/bok1_028577.hcsp.
Neame, R. “Creating an infrastructure for the productive sharing of clinical information.” Top Health Inf Manage 20, no. 3 (February 2000): 85-91. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=10747439.
Nobel, J. J. “Health plan sponsored personal health records: a tool for information driven quality improvement.” AHIP Cover 46, no. 6 (December 2005): 14-6, 18, 20-5. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=16450491.
Norgall, T., B. Blobel, and P. Pharow. “Personal health--the future care paradigm.” Stud Health Technol Inform 121 (2006): 299-306. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=17095828.
Østerlund, Carsten S, Nienke P Dosa, and Catherine Arnott Smith. “Mother knows best: medical record management for patients with spina bifida during the transition from pediatric to adult care.” AMIA ... Annual Symposium proceedings / AMIA Symposium. AMIA Symposium (2005): 580-4.
O'Flaherty, S., E. Jandera, J. Llewellyn, and M. Wall. “Personal health records: an evaluation.” Arch Dis Child 62, no. 11 (November 1987): 1152-5. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Citation&list_uids=3688919.
Odom-Wesley, Barbara. “Using the Delphi Technique to Develop a Model for Family Medical Records.” Educational Perspectives (AOE). http://library.ahima.org/xpedio/groups/secure/documents/ahima/bok1_017647.hcsp.
---. “Envisioning the Personal Medical Record.” Journal of AHIMA 71, no. 10 (December 2000): 39-45. http://library.ahima.org/xpedio/groups/secure/documents/ahima/pub_bok3_004878.html.
Pavlopoulos, S., A. Prentza, E. Kyriacou, S. Marinos, A. Stasis, D. Kalivas, et al. “Mobile Medical Data (MOMEDA)--a Personalized Medical Information System.” Stud Health Technol Inform 72 (2000): 125-32. http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&dopt=Citation&list_uids=11010324.
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